I would like to suggest that some of those people who have posted above, may have been misdiagnosed. Our son (22, normal weight 200 pounds, 6', 5" tall) was wrongly diagnosed with ulcerative colitis and Celiac Disease. He suffered horrible pain from severe ulcerations for almost a year, and severe weight loss and anemia (down to 125 pounds at worst).
What he actually had was amoebic colitis. This can be cured relatively quickly with a combination of antibiotics and amebicides (parasiticides). The immunosuppressants (modulators) he was put on only masked his symptoms and actually gave the disease a chance to take a deeper hold. The amoeba in question is called Entamoeba histolytica. It is very common in tropical countries, but increasingly so in the U.S. and in Canada, because of immigration and because of foreign holiday travel. It is highly contagious, and, if not correctly diagnosed and treated, lethal.
It begins as amoebic dysentery, and sometimes appears to have cleared up (remission), then flares up again. Some people recover, but continue to carry it for many years, experiencing a flare-up when immuno-supresssed. Such a flare-up, when the amoeba rapidly invades the colon in its active form (trophozoite), can do severe damage and can be lethal.
We did our own research (in an ever more desperate panic, as diets and other medications had proved useless), and were unbelievably relieved to discover the real culprit ourselves, about three days before we reckoned our son would have died. By then, his blood tests showed almost black blood, his skin was grey, his lips were turning white, his hands, arms, feet, and legs were freezing cold to the touch, he had to be aided to the bathroom, he was suffering explosive diarrhea up to 11 times in 24 hours, was exhausted and emaciated, and no longer had the strength to live (he was weeping).
He had been in severe pain 24/7 for almost a year. The doctors were pushing for a colostomy, but he refused. Within less than 48 hours of being given the right combination (that he should have received first of all) of antibiotics and amebicides, the horrible pain had already subsided, and he was able to absorb water for the first time in months. The next day he could handle beef stock, and from then on he began to recover. He still has a long way to go, and our new family doctor (long story!) is being very careful to provide the follow-up medication he will need, and has warned us that the healing process will be slow: two steps forward, one step back (good to be warned!), but we have finally got to the bottom of this miserable series of misdiagnoses and mis-medications!
If you have ever had dysentery (gastroenteritis) on holiday, or even in Canada, you may still be carrying this amoeba. It is especially common (sad to say) in the gay community, for obvious reasons. There is lots of good information about Entamoeba histolytica on the Internet. It is well worth checking out if you suspect that the diagnosis you have received may not really have got to the bottom of your troubles. My advice is to persevere and not give up. Diet is very important for the healing process, but it is not always the clue to the disease itself. That said, there are several highly informative and helpful books out there. The best we have found are: “The Maker's Diet” (Jordan Rubin), “Restoring Your Digestive Health” (Jordan Rubin with Joseph Brasco, M.D.); “Breaking The Vicious Cycle” (Elaine Gottschall), and “Nourishing Traditions” (Sally Fallon, M.D.).
Persevere with blogs too: weed through the unhelpful stuff, copy and paste anything you sense may be useful. Follow your instinct. Follow your gut. And pray, pray, pray. May your personal search be blessed and rewarded.