A lady at our church has a special needs child who is unable to swallow her food. She has a g-tube, I think. I know the girl attends a developmental program at her school, and the system had to find someone to be an aide who could deal with the feedings and cleaning and maintaining the tube.
It's not an easy thing to do day in and day out, and I know it must be trying on that child's parents, but they don't let it get them down in public, anyway. They're usually upbeat and positive about their daughter's progress.