About 10 months ago, I began having trouble swallowing and felt like I had a sore throat all the time. An ultrasound revealed a large goiter like, mixed cystic/solid mass on my right thyroid.
After an inconclusive coring (not fine needle aspiration), it was suggested I have that half of thyroid removed due to rapid growth and pressure on carotid. The pathology was non-malignant. Exactly five days after surgery, another mass began growing, lower down, at the notch of my sternum. At the same time, spots (dark red, brown and purple began showing up on my palms. These increased until I had them all over my hands, arms, groin, top and soles of feet and thighs. I looked like I had measles.
I was tested and treated by seven different doctors. The tests showed no lupus, no rheumatic diseases of any kind, no RMSF, no Lyme disease, no infectious disease. I honestly expected a visit from the CDC in their white suits any day. I was diagnosed with Leukocytoclastic or hypersensitivity vasculitis. The spots were essentially blood blisters from my small vessels being attacked. It was thought to be my blood pressure medicine.
I have now been off it for three months, and have seen no reduction in spots. My WBC count is and has remained well above normal for six solid months. The mass at my sternum now measures 2-by-3 inches – yes, inches, not centimeters. And once again I feel like I am being strangled.
The latest thought in my medical mystery is that the mass is on my thymus, and that although it is only supposed to function minimally in adults, it is responsible for my spots, too. I find absolutely nothing about a correlation in any literature that I have read, except that disorders of the thymus are often related to autoimmune issues, which is a category of vasculitis. Has anyone else seen or heard of anything like this?