I have cerebral palsy. I had a tendon release behind both knees when I was 12. I came out of it with severe nerve damage from the scars down. To this day, they cannot cut my toenails, rub my feet with a towel or put regular shoes on my feet. Even the slightest brush of cloth against my legs and feet is torture for me thirty years later. I didn't find out until I was an adult that the farthest I would have ever been able to walk was three blocks. They put me through that hell for nothing and my physio ended permanently within six months when I had to undergo three operations for scoliosis.
Then when I was 21, one of my hips dislocated for the third time and they took my whole right femur out. I am now in such constant pain from the latter surgery that not even morphine can make a dent. And I was dealing with the best surgeons in the business.
The news gets even worse. They put me on Gabapentin partially for the nerve damage. Now I get unpredictable pins and needles pain that can keep me up all night. I just passed another sleepless night. I've been on that drug for two miserable years and am now loath to go off it for fear of reliving my first moments of coming out of surgery. Imagine having been told by everyone around you that a surgery was going to make you better and you wake up from the gas screaming in agony from the casts on your legs, and you were in a common ward full of a dozen kids. I came on here and found my worst fears confirmed. I was messed up by one of the most famous hospitals on the planet.
I lost my apartment two years ago in a nervous breakdown and problems with the 24 hour attendant care. On the psych ward, rather than treat my illness and send me home, I was pressured to go to a nursing home to which had I had access to online, I would have found to be the worst of the worst of the for profit nursing homes. They abuse and neglect the "residents" here like crazy. I expect to be dead or insane well before my name comes up on the six year waiting list and I am only 42.
This is a dangerous, dangerous place to be if you get seriously sick. At other homes run by the same company, residents have died from neglect and not being sent out even on a doctor's order. I have MRSA, an antibiotic resistant bacteria that can kill many of the frail residents here and most of my staff don't even gown up like they should and I have tried to get them to. I used to be happy and optimistic before the nerve damage and this is how my life is going to end.