I had a serious gallbladder issues that were dismissed by docs as IBS for many years (even in the E.R., no scan for me). Then, after several extreme attacks, it was found that my gallbladder was badly infected and my liver levels were way off.
One of my final attacks blew a branch of the hepatic artery and I lost 5 units of blood into my belly and out my backside (while doctors did nothing, and would not listen to me tell them I was bleeding). The bleeding was discovered during my E.R. admission and by me at home on the loo. Had it not been for my very thick blood (polycythemia and high levels of fibrin) I would have bled to death.
In my surgery (open procedure), my gallbladder basically exploded in pus and stones. It was larger that a football and irregularly thickened with polyps (tested negative for cancer). It could not be removed due to extreme inflation (everything was glued to everything else). All they could do was remove all stones and infection, make it a bit smaller, put in a drain tube, and hope.
During my two and a half years of follow-ups, I asked about having it removed (it still hurt a lot all of the time) and the surgeon said if it were his gallbladder he would not let anyone near it with a knife. He considered it be inoperable. I could not get a second opinion. Docs in Australia will not overrule other docs; it is like a club of ego and they are easily offended, to the point they would prefer a patient die rather than have another surgeon "show them up" by saving them.
After two and a half years of regular CTs and ultrasounds (every six months they did a CT and an ultrasound) there was no visible change. Then I did have a change in one six month period. They could not see into my gallbladder at all. No calculi were visible. The thickness of the gallbladder was a mystery. All they could see was one large shadow.
The surgeon said I have porcelain gallbladder and it is inoperable. It still hurts constantly. From time to time I have minor attacks (passing gravel I suspect, but no big ones). I had one of those today. I have pain 24/7 and in the nine years since that surgery they have changes the rules and nobody gets pain meds for anything chronic -- not ever.
I do not (and did not) eat a fatty diet. I eat an all organic diet low in fat as fat has always given me the runs, no alcohol, etc. I now also have fibromyalgia, and Chronic Fatigue Syndrome, chronic myofascial pain syndrome and neuropathic pain problems as well as bone pain (I do not make Vitamin D and cannot absorb it well.)
I want this to stop and I can't have chemo if this goes to cancer as I now also have developed very bad multiple chemical sensitivity (how I wish it were not a real thing, but my huge blister scars from small pesticide exposures say otherwise).